Getting Better; Moving On

welcomebackMy last post was April 28th. It’s so hard to believe it’s been that long already. I’d hoped to do a better job documenting how things were going, but honestly, I just haven’t felt up to it until recently. If good things come to those who wait, I should really be due some amazing stuff soon….

In my last post, I talked a little about my battle with ulcerative colitis. I’m still battling through the same flare up, but things are finally getting a little better. First of all, I finally had to switch doctors. I simply felt I wasn’t getting the care I needed and that’s the nice thing about having options: there’s always the possibility for second opinions.

The 6-MP still makes me nauseous, but not nearly to the extent it did when I first started taking it. I’m hoping to taper off that sooner rather than later. My new doctor, after countless screens, scopes, and tests, decided to bring out the big guns, medically speaking, and try some biologic medication. If you’ve seen ads on TV for Humira, you’ve at least heard of biologics before. I’m now taking something similar to Humira called Simponi, which I give myself via injections once a month (after this month; the first month, you have to give yourself two injections).

Humira and Simponi belong to a family of drugs called TNF-blockers that work by directly affecting your immune system. Since ulcerative colitis (like rheumatoid arthritis) is an autoimmune disease, these drugs go in and try to tame the immune system to get it to stop attacking the body. I gave myself my first injection on Wednesday. I’ll spare you the details, but it seems like the drug might already be working. Even if it’s just a coincidence, the small improvement in my symptoms is certainly welcome.

In other news, I had to request that Thought Catalog remove my article about the terror of becoming a father when you suffer from so many medical issues. (Don’t worry, Dustin Nelson at InDigest is going to republish the piece, so it’s already got a new home!) But after they allowed this inexcusably transphobic article by Gavin McInnes and this inexcusably racist article by Anthony Rogers, I realized the website and I have wildly different values when it comes to what constitutes productive public discourse. I’m not the only one either. There are a ton of other people asking for their work to be pulled too. These types of articles are so far past what’s protected by the First Amendment that they’ve devolved into mere hate speech. Satire should be thought provoking (or at the very least, funny), but should the (horribly weak) argument arise that those two pieces were satire, they failed on all accounts. The pieces only succeed on one level: illustrating the very definition of click bait. #Sorrynotsorry, but I just can get on/stay on board with that.

And saving the best for last: Six years ago today, I made the best decision of my life: I married the very best person I’ve ever known (and I’ve known some truly great ones)!

Without Jenni, so much of the last 6 years would have probably actually been as impossible as they’ve felt—losing too many beloved pets to cancer, my own numerous health battles, finishing [and supporting me through yet] another graduate degree. The list is nearly endless, I just wanted to take a few minutes to tell the woman I love more than anything: Happy Anniversary!

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